ROYAL OAK AREA
HUNTINGTON'S DISEASE SUPPORT GROUP

This group meets the fourth Tuesday of each month to share their experiences, strengths and hopes in order to solve common problems and to let you know that you are not alone in coping with Huntington's Disease. We will welcome you if you have questions about HD, want to share your views, or just come to listen and learn. A time for general discussion follows the program.

The meetings are held at 7:00 pm at Wm. Beaumont Hospital, 3601 West 13 Mile Road, in Royal Oak in the A-B-C Conference Dining room of the Administration Building. 

To park, enter the hospital campus from 13 Mile (Employee entrance), follow the road south , past the West  Parking Deck, past the West Parking Lot.  Turn left toward the front of the Administration Building.  Turn left into the parking lot next to the Administration Building.

If the lot is full, please proceed to the Physicians Lot across the street or the South Parking lot or deck.

MEETING NOTICES

Date: November 15, 2008
Time: 1:00 - 3:00 pm
Program: To Be Announced
Date: July 19, 2008
Time: 1:00 - 3:00 pm
Program: To Be Announced
Date: April 17, 2008
Time: 1:00 - 3:00 pm
Program: To Be Announced
Date: January 19, 2008
Time: 1:00 - 3:00 pm
Program: Janet from Odyssey Hospice
Date: November 17, 2007
Time: 1:00 - 3:00 pm
Program: Dr. James Garbern  from Wayne State University Neurologist
Date: January 22, 2007
Time: 7:00 - 9:00 pm
Program: To Be Announced
Date: December, 2006     - No Meeting  in December 
Time: NA
Program: NA
Date: November 28, 2006
Time: 7:00 - 9:00 pm
Program: Guest Speaker -Kurt Davis from Met Desk
Date: October 24, 2006
Time: 7:00 - 9:00 pm
Program: Guest Speaker- Julie from Hospice
Date: September 26, 2006
Time: 7:00 - 9:00 pm
Program: To Be Announced
Date: August 22, 2006
Time: 7:00 - 9:00 pm
Program: To Be Announced
Date: July 25, 2006       *No Meeting*
Time: NA
Program: *No Meeting*
Date: June 27, 2006
Time: 7:00 - 9:00 pm
Program: Guest Speaker speaking on Nutrition & Overcoming Nutritional Challenges for those with disabilities
Date: May 23, 2006
Time: 7:00 - 9:00 pm
Program: (Kurt Davis, Financial Adviser), from MetLife Ins. Company on how MetLife can be helpful to our HD families with discussion time following.  
Date: April 25, 2006
Time: 7:00 - 9:00 pm
Program: Local Resources
Date: March 28, 2006
Time: 7:00 - 9:00 pm
Program: Dr James Garbern, neurologist, will discuss research, and answer questions. 
Date: February 28, 2006
Time: 7:00 - 9:00 pm
Program: Open discussion or video.
Date: January 24, 2006
Time: 7:00 - 9:00 pm
Program: Our speaker will be a local social worker.  
Date: December 27,  2005  No meeting Happy Holidays
Time: NA 
Program: No meeting .  Happy holidays!!
Date: November 22, 2005
Time: 7:00 - 9:00 pm
Program: We will have a speaker on home care. 
Date: October 25, 2005
Time: 7:00 - 9:00 pm
Program: A nutritionist will speak.  
Date: September 27, 2005
Time: 7:00 - 9:00 pm
Program: Carol Johns - Emotional behavior
Date: August 23 , 2005
Time: 7:00 - 9:00 pm
Program: Counselor from Beaumont Hospital- Grief in general 
Date: July 26 2005  --  No meeting  
Time: NA
Program: No meeting 
Date: June 28, 2005
Time: 7:00 - 9:00 pm
Program: Massage therapist Kelly Krissoff
Date: May 24, 2005
Time: 7:00 - 9:00 pm
Program: Open discussion
Date: April 26, 2005
Time: 7:00 - 9:00 pm
Program: To be announced
Date: March 22,  2005
Time: 7:00 - 9:00 pm
Program: Hospice care in Michigan, presenter Amanda Hajciar
Date: February 22, 2005
Time: 7:00 - 9:00 pm
Program: UofD Law students to present various services available
Date: January 25,  2005
Time: 7:00 - 9:00 pm
Program: Huntington's Disease Forum in the auditorium of the administration building. 

Click HERE for additional information.

Date: December 28, 2004       No meeting in December. 
Time: NA
Program: No meeting in December.
Date: November 23, 2004
Time: 7:00 - 9:00 pm
Program: Speaker on health care
Date: October 26, 2004
Time: 7:00 - 9:00 pm
Program: James Karagon, ACSW/Open discussion
Date: September 28, 2004
Time: 7:00 - 9:00 pm
Program: Program planning and open discussion.
Date: August 24,  2004
Time: 7:00 - 9:00 pm
Program: Highlights from camp.
Date: July 27,  2004
Time: 7:00 - 9:00 pm
Program: A speaker on health care
Date: June 22,  2004
Time: 7:00 - 9:00 pm
Program: We will have a speaker on caregiving.
Date: May 25,  2004
Time: 7:00 - 9:00 pm
Program: Dr. Carol Johns, psychologist, will be presenting on grief and depression in general, and also how grief and depression affect caregivers.  
Date: April 27, 2004
Time: 7:00 - 9:00 pm
Program: Open discussion
Date: March 23 ,2004
Time: 7:00 - 9:00 pm
Program: Our presenter will be Dina Burroughs, "Tips for Caregivers".
Date: February 24, 2004
Time: 7:00 - 9:00 pm
Program: To be announced.  Open discussion after program.
Date: January 27, 2004
Time: 7:00 - 9:00 pm
Program: Our presenter will be James Garbern, MD, PhD, neurogeneticist from Wayne State University, School of Medicine, Department of Neurology.
Date:

THE DECEMBER MEETING IS CANCELLED.  PLEASE WATCH FOR THE NEXT NOTICE OF THE JANUARY AND FEBRUARY MEETINGS.
Time: NA
Program: NA
Date: November 25, 2003
Time: 7:00 - 9:00 pm
Program: Video  "Swallowing Problems " with Brenda Francis
Date: October 28, 2003
Time: 7:00 - 9:00 pm
Program: Stu Blatt, MA, PT will present "Exercise and It's Benefit for  HD" a 30 minute video.
Date: September 23, 2003
Time: 7:00 - 9:00 pm
Program: Open discussion
Date: August 26, 2003
Time: 7:00 - 9:00 pm
Program: Susan Thorpe will speak on respite care.
Date: July 22, 2003
Time: 7:00 - 9:00 pm
Program: Our presenter  will be Jerry Stanecki, an inspirational/motivational speaker
Date: June24, 2003
Time: 7:00 - 9:00 pm
Program: There will be a 30 minute video of Brenda Francis, Speech and Language Pathologist, speaking about helping pHD.
Date: May 27, 2003
Time: 7:00 - 9:00 pm
Program: Our presenter will be Joseph DiPuchio, MSW, who will give an overview of nursing homes and discuss the Federal HIPAA Act.
Date: April 22, 2003
Time: 7:00 - 9:00 pm
Program: 45 minute video, Wendy Lustbader, MSW, Speaks to Ccaregivers
Date: March 25, 2003
Time: 7:00 - 9:00 pm
Program: 30 minute video "Hiding Out with HD", by a pHD sharing her experiences. 
Date: February 25, 2003
Time: 7:00 - 9:00 pm
Program: We will be in breakout groups covering :  At risk, male caregiving, female spouse caregiving, pHD, and other.
Date: January 28,  2003
Time: 7:00 - 9:00 pm
Program: The presenter will be Shannon O'Neil from Hospice of Michigan.
Date: THERE WILL BE NO MEETING IN DECEMBER, 2002.  HAPPY HOLIDAY!!
Time: NA
Program: NA 
Date: November 26, 2002
Time: 7:00 - 9:00 pm
Program: Our speaker will be Cliff Weisburg, a lawyer, who will discuss SSDI/SSI
Date: October 22, 2002
Time: 7:00 - 9:00 pm
Program: Wayne County Vulnerable Adult Task Force, Wayne County Sheriff Dept. 
Date: September 24, 2002
Time: 7:00 - 9:00 pm
Program: Karen Kajewski, MS, a genetic counselor from Wayne State, will discuss "To Test or Not To Test"
Date: August 27, 2002
Time: 7:00 - 9:00 pm
Program: Wayne County Vulnerable Adult Task Force, Wayne County Sheriff Dept. 
Date: July 23, 2002
Time: 7:00 - 9:00 pm
Program: Mary Ann Ryan will speak about Maple Ridge Respite Care.
Date: June 25, 2002
Time: 7:00 - 9:00 pm
Program: Phyllis Stater re:  learning how to organize in the face of confusion.
Date: May 28, 2002
Time: 7:00 - 9:00 pm
Program: There will be a presentation by Diana DeWar from Disability Service, Inc. regarding Disability and SSI issues.
Date: April 23, 2002
Time: 7:00 - 9:00 pm
Program: Family Fun Night!  Each person should bring a "White Elephant" in a bag  (gag gift or whatever).  We'll  be playing Crazy Bingo!!  All family and friends are welcome.
Date: March 26, 2002
Time: 7:00 - 9:00 pm
Program: There will be a presentation by Diana DeWar and Christa O'Dell from Disability Service, Inc.
Date: February 26, 2002
Time: 7:00 - 9:00 pm
Program: "Care Givers Panel"
Date: January 22, 2002
Time: 7:00 - 9:00 pm
Program: HD update video featuring Phil Hardt. Phil was a speaker at the National Convention and spoke at the Mt. Pleasant support group meeting this past October. He will talk about how he prepared for his family and himself as an "at risk" person and how he has not only learned to cope with HD, but has learned to live with HD.
Date: December 25, 2001
Time: 7:00 - 9:00 pm
Program: There will be no meeting in December
Date: November 27, 2001
Time: 7:00 - 9:00 pm
Program: "Denise's Story" through the eyes of her mother, Charlene. Part II.
Date: October 23, 2001
Time: 7:00 - 9:00 pm
Program: "Denise's Story" through the eyes of her mother, Charlene. Part I.
September 25, 2001
Time: 7:00 - 9:00 pm
Program: Presentation by Mitchell, Valeri and Associates. "We are a group of non-fee based independent agents servicing all your financial needs. We have been helping seniors in the Detroit area for over 25 years, specializing on keeping things simple for our customers. Servicing our clients has always been and always will be our #1 priority. Our group specializes in keeping your estate out of probate court. Our seminars concentrate on "keeping things simple". We encourage seniors to come to our complimentary seminars and to gain."
Date: July 24, 2001
Time: 7:00 - 9:00 pm
Program: Laurie Eckles will present an overview/recap of the HDSA 16th Annual Convention, "Fulfilling The Promise", held in San Diego, CA June 29-July 1, 2001.  There will also be an open discussion and Question and Answer Period.
Date: June 26, 2001
Time: 7:00 - 9:00 pm
Program: Panel to discuss "The Physician's Guide to the Management of HD"
Date: May 22, 2001
Time: 7:00 - 9:00 pm
Program: Generation 2000 - Phase II -- Generation 2000 was launched in 1999 with a goal of raising $500,000. The campaign has now raised more than $2.7 million. Generation 2000: Fulfilling the Promise has now been launched with a goal of raising $25 million by 2006, to be used for research.
Date: April 24, 2001
Time: 7:00 - 9:00 pm
Program: The Genome Project - report of completion June, 2000. What does this mean for HD families?
Date: March 27, 2001
Time: 7:00 - 9:00 pm
Program: "Clinical and Scientific Update on Huntington's Disease" -- Lawrence W. Elmer, MD, Ph.D., assistant professor and Director of the Movement Disorder Center, Medical College of Ohio.
Date: February 27, 2001
Time: 7:00 - 9:00 pm
Program: Jim Shuster. Elder Law Attorney. An Elder Law Attorney is a person who helps families handle the crisis of placing a loved one in a nursing home.
Date: January 23, 2001
Time: 7:00 - 9:00 pm
Program: Peter A. LeWitt, MD will speak on Early Diagnosis & Management Treatment of Motor Fluctuations and New Research Developments. Dr. LeWitt is a professor of neurology and psychiatry at Wayne State University.

 

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